One year ago today I wrote my first post for this blog.  I remember thinking at the time that I wanted to try and post almost every day but wondered how I would possibly think of something to say or post every day.  Oddly, it really has not been a problem.  In fact, very rarely do I even think in advance about what I’m going to post anymore.  I usually just have so much stuff rolling around in my brain that when I sit down to write, out it comes.   Anyway, in commemoration of this day I thought I would answer some questions that I have been asked  over the past year via email about us and about the blog.   Often times people don’t feel comfortable commenting on this site due to the nature of the subject matter so they just email me.  And that’s fine.   Anyway, here goes.

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Q: Why do you blog?

A: I blog to keep a journal of our lives and to record the stories and events in our lives as they happen.  I blog to let people know they are not alone in raising a bipolar child and that it can be done with dignity and respect for the child.  I blog to share our ups and our downs and hopefully in doing so raise awareness of bipolar disorder in children and teens.  I blog to let people know that bipolar children and teens can be the most wonderful and creative people they will ever know and that they have a great deal to offer this world and the communities around them.  I blog to let people know that bipolar disorder affords our society some of the greatest and most interesting people we have and we should honor and respect our differences and value what these differences bring to our society.

Q: Why do you blog anonymously?

A: I blog anonymously because Rye’s story and Don, Rye’s and my family story are not mine to tell except in an anonymous format.  When Rye is old enough, he can share his own story if he wants to.  And if he never wants to, that’s fine too.  But this way he is protected.

Q: Do you believe that Early Onset Bipolar Disorder exists?

A: Yes, I do.  I believe that it is not common and I believe that it is more common in children that have a biological parent or direct relative that has bipolar disorder or depressive disorder (unipolar). I also believe that it does not always have to be medicated in the early years or even continuously medicated throughout life.  I believe it all depends on the child/teen and how much their emotions and behaviors are interfering with their quality of life, their thought processes, their safety, and the safety of those around them.

And, for people who do not believe Early Onset Bipolar exists, I challenge you to start attending some bipolar support meetings in your area and ask all of the adults there when they feel they began to deal with bipolar disorder.  Most will say in the teen years or early adulthood but many will say they have had bipolar disorder since as early as they can remember – even as a young child.   So this is not a new phenomenon.

Q: How do you feel about psychiatric medications and children?

A: I have mixed feelings about psychiatric medications in general.  And I think some are better than, more researched and safer than others.  Done correctly, the right medications can literally save a child’s life and/or their quality of life.  There is no denying that.  And we see that now with our son.  So in that respect I am for it.  That said,  I also believe that medications can be overused and have been overused in children.  Particularly young children.  I  think we often create bipolar disorder in young children by prescribing them antidepressant [SSRI] and stimulant medication too readily and at too young of an age when the child does not really need it.   I also believe, as our psychiatrist believes, that if your child has a paragraph long list of medications they are taking, at least some of the medications aren’t working and you should rethink your strategy.  Piling psychiatric medication on top of psychiatric medication is not a good treatment plan as your brain reorganizes and accommodates for every psychiatric medication it is exposed to.  Psychiatric medications all come with issues that may not be evident in the short term and the benefits as well as possible side effects and problems created by the medicines should be taken into account at all times.  And all psychiatric medications have withdrawal effects that can be dangerous if not handled with care.

Q: Do you believe in using natural healing methods for bipolar disorder?

A: Yes.  I also think that they work for some people better than others.  I think that treating bipolar disorder is not a one size fits all strategy and that the disorder exists, like everything, on a continuum.   So what works for one person may not work for another.  Also,  what works at one time in one’s life may not work in another time.  One person may be able to completely control their symptoms using natural methods while another may not.  More often than not I think it’s a blending of methods that works best.  Especially in the teen and young adult years when there is a high flux of hormones in a person’s system.  Medication combined with natural techniques is what we use with Rye.

Q: Do you believe in always listening to you child’s psychiatrist?

A: Yes, if you have a good doctor that you trust. And I believe that your relationship with your child’s psychiatrist should be a partnership so that your doctor  always listens to you as well. One aspect of a good doctor is that they are ok with being challenged and they value your opinion as a parent and are flexible.  If your doctor is not ok with being challenged and questioned and is not flexible or does not listen to your concerns regarding medications or your child, get a new one.  As a parent, always, always listen to your inner voice and know that you know your child best.  If your doctor is not working in the best interest of the child or you feel it just doesn’t ‘feel right’, it’s not right.  You are your child’s best advocate and doctors are flawed like everyone else in the world.  They are human.  They make mistakes.  They have a certain perspective and mind set they come from and they are influenced by.   Know that, accept that and work with it.  If a medicine isn’t working for my child, it’s gone.  I’m not going to wait around for it to do permanent damage to my child.   Your doctor can’t fix that once it’s done.

Q: How do you feel about psychiatric hospitals?

A: I think the treatment model used in inpatient psychiatric hospitals today in the United States is often inhumane, outdated and harmful.  I think psychiatric hospitals should only be used as a last resort as they can cause more damage than they ever help.   I’ve heard more horror stories about psychiatric hospitals than I would ever care to share.   They are not a place for healing.  And ironically teaching hospitals can often be the worst.

Q: Do you believe in therapy?

A: Yes.  I believe a good therapist can help all of us, bipolar or not.  I do not believe, however, that behavioral therapy or psychoanalysis/talk therapy in and of itself can cure or control the all of the symptoms of bipolar disorder in children and teens.  Children and teens do not have the capacity to think their way out of being bipolar and it is important to have a therapist that understands this.

Q: Do you think environment is important in controlling bipolar symptoms?

A: Yes, very much so.  Stress is a major, if not the primary, trigger for bipolar symptoms and controlling one’s environment and mitigating the stress within that environment is very important in controlling these symptoms.

Q: What’s your favorite thing about blogging?

A: It’s fun.  It’s creative.  It’s personal.  And I have met some really interesting people through it and learned a lot.  I love getting emails from people saying they like the blog and feel it’s accurate and helpful.  That’s the best part.  Well, that and looking back on all of stories, happenings, etc.  The recording of our life story.

A few weeks back a mom emailed me regarding her daughter who had been diagnosed as a young girl with bipolar disorder.  Her daughter is now grown but through a series of emails she shared with me a bit of history about her daughter’s struggles when she was younger with school and moods and their subsequent journey to heal her naturally.  Although I was fascinated with the information, I was a little overloaded at the time with our change to homeschooling and could not fully process the information.  Now I am adjusted to our schedule and am going back and looking deeper into the information she sent me.  She sent me some great information about thyroid function, vitamin processing (or lack thereof), nutrition and chiropractic treatment.   In the last email we exchanged she told me that her daughter felt one of the best things she did to help herself was upper cervical chiropractic adjustments.  So, I started researching this a bit.  Could this help Rye as well?

Here are some of the links and examples I found that say maybe yes:

Female, Age 8 years, Bipolar Disorder

At her evaluation, an upper neck injury was discovered. Her parents recalled that she fell out of her bed at age 2 and surmised that perhaps that fall was the source of their child’s neck injury. After undergoing the first upper cervical adjustment, no further adjustments were necessary as her neck healed and stabilized. In the first month, her parents reported some improvement in her condition but that her mood still fluctuated quite extensively. By the third month, her parents reported a substantial improvement in her mood in that she could easily handle situations that previously had set off episodes of mania, such as birthday parties, sleepovers, etc. In addition, they reported that she had also experienced improvement in her motor developement in that balance and coordination had also dramatically improved.

http://www.erinelster.com/CaseStudies.aspx?ConditionID=4

After 1 month of care, the patient reported an absence of seizures and manic episodes and improved sleep patterns. After 4 months of care, seizures and manic episodes remained absent and migraine headaches were reduced from 3 per week to 2 per month. After 7 months of care, the patient reported the complete absence of symptoms. Eighteen months later, the patient remains asymptomatic. CONCLUSION: The onset of the symptoms following the patient’s accident, the immediate reduction in symptoms correlating with the initiation of care, and the complete absence of all symptoms within 7 months of care suggest a link between the patient’s headfirst fall, the upper cervical subluxation, and his neurological conditions. Further investigation into upper cervical trauma as a contributing factor to bipolar disorder, sleep disorder, seizure disorder, and migraine headaches should be pursued.

http://www.ncbi.nlm.nih.gov/pubmed/15129207

Cases regarding epilepsy and add/adhd and autism.

http://www.839-7171.com/index.php?p=72138

http://www.839-7171.com/index.php?p=72134

Son with ADHD & Bipolar

My son Christian was diagnosed with ADHD at the age of 3. His behavior was very different from his twin sisters in that he was very hyperactive, impulsive, irritable, and was not able to focus. I had been bringing him to Goldsboro Pediatrics and was then referred to Greenville Psychiatrists. He was prescribed numerous medications such as Clonidine, Trileptal, Concerta, Abilifi and several therapists, including speech and behavioral. The edications seemed to help for a short time but the problems would return.

http://www.chiropracticadv.com/adhd-bipolar.html

Various case studies regarding upper c spine adjustments helping a variety of situations and symptoms.

http://www.upcspine.com/

Now, I am not saying this is going to work for us.  But there is obviously evidence that is helps some people.  And, as luck in on our side with this one, Don has a good friend who is a very successful chiropractor and we spoke with him about this type of treatment and he is going to research the specifics of it and try and help us. So we are seeking his help on this and start this week.

Who knows?  We may be one of people helped by this.  It’s worth a try.

Thanks Polly!  I am looking into the rest of your information as well.

[Note: the sculpture at the top of the post and others like it can be found at
http://www.theprofessionalcollection.com/Metal%20Creations/medical_figurines.htm ]