As it turns out, Rye could not follow the rules of the house so we took him to the hospital. We could not get the Depakote level high enough, fast enough to stay helpful once his body adjusted to it and we just could not keep him safe. From himself.
It’s kind of a weird thing, really.
I’m having a really hard time with it all. It’s harder than I thought it would be. He is at a hospital hours from home and luckily I have someone in the city Rye is in to stay with so I am able to be near him but man am I drained. It’s hard for me to come to terms with everything. Luckily Don is staying very calm and rational about it all and he is being very helpful. I am so very grateful for that.
So far we don’t know anything more than when we came in last week but a new team of doctors start on his case today (it’s a teaching hospital) and Don said they are starting educational testing on him today which is wonderful. We desperately need this testing as our school system/county has been more than negligent about doing it and he really has not been tested in many years – they just kept updating his IEP with no relevant testing.
I am taking a break from visiting him for a couple of days. He is really playing on my sympathy/guilt when I visit him and it is keeping me from being able to make rational decisions for him. That is hard too. I often wonder how we got to this point. But then I realize that we got to where he was keeping us all in such a state of constant activity and chaos that no one had much time to think about anything. We got to the point where all we were doing was reacting. And it breaks my heart that I feel I can’t trust him now. But then I just have to tell myself he is not well and he is where he needs to be. He has definitely become a different kid than the one I know he is when he is not struggling so much internally. And I desperately miss the old Rye. The real Rye.
I guess that’s it for now. Hopefully they make progress this week so we can start to get some answers. And I need to get some rest.
3 Comments
I wish I could do more, but I’m sending love and hoping that you get some much-needed rest over the next few days.
I imagine he desperately misses the old Rye too. He’s in the hospital so that the old fella can “come back” and he will feel more like himself. Prayers from this corner.
Praying for Rye and you too Meg, sending love from our family.
Post a Comment